Date: Friday 28 February 2025
Time: 14:30 - 18:00
Location:
The Curve Lecture Theatre,
View map
Informative Sessions: 2:30pm - 4:30pm
Drinks & Networking: 4:30pm - 6:00pm
About the event
Join us for an engaging series of talks and sessions in honour of Rare Disease Day, focusing on the transformative impact of genomics on therapies for individuals with rare genetic conditions.
Hear from leading experts as they share the latest advancements and insights in the field. Patients and representatives from charities will also share their personal experiences in developing and accessing therapies for rare conditions.
After the presentations, there will be drinks provided and a networking session to engage in deeper discussions with experts, charities, and patients.
Feel free to drop in anytime throughout the afternoon—whether you're able to attend the whole event or just part of it. While the event is designed to be in-person, we also offer a hybrid option for those who prefer to listen to the talks online.
About Rare Disease Day
Rare Disease Day is a worldwide initiative focused on promoting equality in social opportunities, healthcare, and access to diagnosis and treatments for those affected by rare diseases.
Since its inception in 2008, it has been instrumental in fostering a diverse, global community united across various rare diseases, all working together towards a common goal.
Learn more by visiting the Rare Disease Day website.
Register
Contact Details
Nicky Scott